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Luke Teat

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Long month

much love to all. Not sure what happened to first entry. Just wanted to say Luke is doing well although the surgery didn’t seem to help the apnea :( but his opening at brain stem is much more open now with no compression. A dyraplasty was not done trying to avoid healing complications. 

Lujw received manynice cards packages and gifts. He thinks he’s hot stuff with money in his wallet and a gift card. Please know I thank you all from the bottom of my heart. To see him smile gives me the encouragement I need each day. The past few weeks have been really tough and then Friday I had another terrible experience I will post here 

Some things you can’t unsee....
Sorry for the long post but just needed to write. Most of you know the past few months have been hard. Jake being deployed. Michaels horrific car accident. Lukes brain surgery. It has taught us to slow down, to embrace every happy funny moment and to cherish life as much as possible.
On Friday , Luke and I were on I97 heading to dads to give him his Christmas gift and pick up a friend from the airport. About three miles before dad’s exit I experienced one of the most traumatic events of my life. A truck came from the right hand lane straight across all three lanes and into the embankment. The driver was ejected. As I’m terrified and screaming he landed in front of my car. In front of my car....I had a split second to swerve and put car in park. I jumped out and knelt , in the rain with no thought to it being an interstate and started praying. I rubbed his arm, assured him I was there. I told him my name over and over and begged God to please help him. Cars were slowing down to look but No one would help. A tractor trailer stopped in the middle lane to shield us. Finally a dear lady who was a nurse knelt down beside me as she was in phone with 911. She prayed with me. A gentleman in an Air Force uniform came too and covered him up. I kept assuring him that I was there. I wouldn’t leave him.
I never got a response from him. But I didn’t leave him alone. His name was Randy Allen. He was a son, brother and friend to many. He passed away at 4:50pm that day. His injuries too severe. I’ve gained new friends and found out that he did not like being alone. I was there for him. Not to be thanked but because it’s what God wants us to do. Love and be kind to others. Randy was a total stranger yet I felt so connected. It was one of the most terrifying moments of my life but I hope Randy heard me. I hope he knew he wasn’t alone.
I kept questioning my faith and asking God why I couldn’t be there to help Michael, my oldest child, to protect him and comfort him at his accident scene. But now I know, and believe, God had other plans for me to be with someone else in their time of need.
Thank you for listening. Writing helps me deal with emotions. I’m having a hard time with all of the events lately but this last one is haunting me. Please continue to pray for my family and for Randy’s family. Much love. Xo

Lukes surgery

sending much love to all!! Sorry for any typos using my phone to update. Luke has is surgery yesterday and we are still inpatient at JHH but he is doing wonderful. He had a really rough day yesterday post op. Had to stop on transport up because he wouldn’t stop throwing up. 

Celide came to our room to bring us his metabolic menu while in patient. She brought him a few PKU friendly snacks. We also saw our last geneticist dr Hamosh who was a breath of fresh air in all the mayhem. Luke was sleeping and we talked a lot. 

Mall of his siblings (the four who have also been through Chiari surgery) were here to see him as well as his poppy. Our friend Monica is here with her little boy who is battling a rare form of cancer. She came down to sit with me earlier as her husband was here as well. I love Monica. Please say extra prayers for her little boy and her strength as well. 

Today luke is doing so good. It’s amazing. He finally got his catheter out he’s drinking his formula and eating. He was up and in chair for a few hours. He is still on some iv meds but most are oral. he was able to FaceTime his brother in Afghanistan and his oldest brother home recuperating from his surgery. 

We have had many trying times lately but the power of prayer has shown how great HE is!! I would post a pic of Luke here but I’m having trouble uploading it on my phone. My apologies. 

Much love to all. Xo

Lukes surgery

sending much love to all!! Sorry for any typos using my phone to update. Luke has is surgery yesterday and we are still inpatient at JHH but he is doing wonderful. He had a really rough day yesterday post op. Had to stop on transport up because he wouldn’t stop throwing up. 

Celide came to our room to bring us his metabolic menu while in patient. She brought him a few PKU friendly snacks. We also saw our last geneticist dr Hamosh who was a breath of fresh air in all the mayhem. Luke was sleeping and we talked a lot. 

Mall of his siblings (the four who have also been through Chiari surgery) were here to see him as well as his poppy. Our friend Monica is here with her little boy who is battling a rare form of cancer. She came down to sit with me earlier as her husband was here as well. I love Monica. Please say extra prayers for her little boy and her strength as well. 

Today luke is doing so good. It’s amazing. He finally got his catheter out he’s drinking his formula and eating. He was up and in chair for a few hours. He is still on some iv meds but most are oral. he was able to FaceTime his brother in Afghanistan and his oldest brother home recuperating from his surgery. 

We have had many trying times lately but the power of prayer has shown how great HE is!! I would post a pic of Luke here but I’m having trouble uploading it on my phone. My apologies. 

Much love to all. Xo

Michael and Luke

Luke is doing ok a lot of headaches. Kind of worrying me and his apnea episodes are increasing daily. His pku levels were abnormally high which is very concerning. We had preop Wednesday and this mama is getting nervous. My life has been spiraling out of control lately and it scares me. I haven’t been able to work and with surgery coming in a few short days I’ll be out a while. Christmas isn’t supposed to be a worry but honestly it’s freaking me out. The older children totally get it but the three youngest not quite. And it stinks. Especially when we’ve always prided on standing on our own two feet. Sorry just venting. 

Today we got back into the swing of schoolwork as the last ten days with Michaels accident it was put on the back burner. Luke did bible and science lessons today. Maddie chose bible and language. They seem to learn better with two or three subjects a day then all the curriculum at once. It’s going well though. 

Here is my update I posted on Facebook for Michael tonight. Thank you again for all your love and support :

 

Michael had a bit of a rough day ????he had a few “near fainting” spells and said several times through the day he felt funny. He had an appt with pcp then they sent him for labs to check his blood count. His blood pressure was low 100/53 when PT was here. Was a little better at drs. We went to tow yard after appts and boy did that rip me apart. Whew. My son is so lucky to be alive. Tomorrow he celebrates his 26th birthday and I thank our Father in Heaven for allowing him to see it. Thank you Jory and Mary for making him smile and pizza for dinner. Thank you Grandmom  Elizabeth and Eddie for stopping by and thank you Russell for your “manpower”???? today.      Nikki and Michael are all snuggled in recliners enjoying each other’s company but now fast asleep. Thank you again from the bottom of MY heart for all the love support and prayers through this most difficult journey. I will update on Michael tomorrow and hopefully have good blood results. Much love. Xoxo