Kayli was diagnosed at the age of 8 with ganglioneuroblastoma. Now, at age 20 she is fighting her disease once more. Now in her 12th year of follow up, she has relapsed three times, endured 4 major abdominal surgeries, removal of 5 tumors, chemo, radiation and countless procedures. She currently has tumors in her spine, shoulder, hip and pelvis. Please continue to pray that God would be glorified through this trial in Kayli's life.
When Kayli was 8 years old, she went to the doctor for her well child check-up. Upon examination, our doctor felt a large mass in her abdomen and sent us to Akron Children's. After a whirlwind of tests and then surgery, Kayli was given the diagnosis of ganglioneuroblastoma. Her tumor was the size of a grapefruit and they were not able to resect all of it, due to it lying along the vena cava. For the next…
MIBG results and a plan
Tuesday, July 29, 2014 12:02 PM
"I would have despaired unless I had believed that I would see the goodness of the Lord in the land of the living. Wait for the Lord; Be strong, and let your heart take courage; Yes, wait for the Lord." ~Psalm 27:13-14. I was reminded of the verse during the sermon that I listened to with Kayli on Sunday morning. The sermon title was: "God is always good; I will not despair". God provided the perfect encouragement to start our week. Moments before the sermon started, I opened my email to see if we had a report from the hospital...it was there. We waited until today to post results because we wanted to talk to Dr. Kuerbitz first to have all the information...not just a portion of it. The MIBG scan showed that Kayli has 2 new areas of disease. They have stopped the current chemo and will be starting…