Kayli was diagnosed at the age of 8 with ganglioneuroblastoma. Now, at age 20 she is fighting her disease once more. Now in her 12th year of follow up, she has relapsed three times, endured 4 major abdominal surgeries, removal of 5 tumors, chemo, radiation and countless procedures. She currently has tumors in her spine, shoulder, hip and pelvis. Please continue to pray that God would be glorified through this trial in Kayli's life.
When Kayli was 8 years old, she went to the doctor for her well child check-up. Upon examination, our doctor felt a large mass in her abdomen and sent us to Akron Children's. After a whirlwind of tests and then surgery, Kayli was given the diagnosis of ganglioneuroblastoma. Her tumor was the size of a grapefruit and they were not able to resect all of it, due to it lying along the vena cava. For the next…
long day today
Tuesday, August 26, 2014 7:13 PM
Kayli had a long visit at the hospital today. She started off by seeing Dr. Kuerbitz and talking about how she is doing on her new chemo. She has just completed week 1 and feeling the effects of nausea, fatigue and body aches. With this being a drug that hasn't been used against her disease before, she is being monitored carefully. She then had her mediport accessed and flushed for the month. We were so excited that Laurie was able to get a blood return from this line...that hasn't happened in months! This means the line is still good and usable...a huge praise if she needs some blood products in the near future. Shortly after the access, Kayli began to have an allergic reaction to something. We aren't really sure what at this point. So, some IV Benadryl, cool compresses and the decision to do her next access on her…