Kayli was diagnosed at the age of 8 with ganglioneuroblastoma. Now, at age 20 she is fighting her disease once more. Now in her 12th year of follow up, she has relapsed three times, endured 4 major abdominal surgeries, removal of 5 tumors, chemo, radiation and countless procedures. She currently has tumors in her spine, shoulder, hip and pelvis. Please continue to pray that God would be glorified through this trial in Kayli's life.
When Kayli was 8 years old, she went to the doctor for her well child check-up. Upon examination, our doctor felt a large mass in her abdomen and sent us to Akron Children's. After a whirlwind of tests and then surgery, Kayli was given the diagnosis of ganglioneuroblastoma. Her tumor was the size of a grapefruit and they were not able to resect all of it, due to it lying along the vena cava. For the next…
A journey of 13 years
Thursday, April 9, 2015 6:53 PM
Today is a remembrance day for our family. Thirteen years ago today, an ordinary Tuesday turned into the beginning of a journey we never imagined we would be on. We took Kayli to our doctor for her 8 year old well child check up. She was beautiful and healthy in every way. As we chit chatted with her doc, he thoroughly checked her over and a look of concern came across his face. He asked Michael and I to come over and feel something. He had us feel the left side of her belly. It was soft and pliable as it should be. He then had us feel the right side of her belly....something was in there. Something large, hard and out of place. I looked him in the eye and asked him what he thought it was. He sat down and began to write notes and orders, looked me…