Kayli was diagnosed at the age of 8 with ganglioneuroblastoma. Now, at age 20 she is fighting her disease once more. Now in her 12th year of follow up, she has relapsed three times, endured 4 major abdominal surgeries, removal of 5 tumors, chemo, radiation and countless procedures. She currently has tumors in her spine, shoulder, hip and pelvis. Please continue to pray that God would be glorified through this trial in Kayli's life.
When Kayli was 8 years old, she went to the doctor for her well child check-up. Upon examination, our doctor felt a large mass in her abdomen and sent us to Akron Children's. After a whirlwind of tests and then surgery, Kayli was given the diagnosis of ganglioneuroblastoma. Her tumor was the size of a grapefruit and they were not able to resect all of it, due to it lying along the vena cava. For the next…
Tuesday, December 9, 2014 6:13 PM
I thought I would take a moment to update you all on what has been going on for Kayli. In my last post, I had mentioned that she was scheduled for an MRI to check the status of one disease area in particular...her thoracic spine. The MRI report showed that disease was present in most of the vertebrae in this region, but no soft masses where invading the spinal column. We were very glad to hear that. Her doctor has been working the last few weeks to come up with a treatment that Kayli could take that would be palliative in nature...this means that it wouldn't be curative, but may slow disease progression for a time. Kayli is wanting to keep fighting her disease as long as she can and he is going above and beyond to find tools for her to do this. He has come up with…