Kayli was diagnosed at the age of 8 with ganglioneuroblastoma. Now, at age 20 she is fighting her disease once more. Now in her 12th year of follow up, she has relapsed three times, endured 4 major abdominal surgeries, removal of 5 tumors, chemo, radiation and countless procedures. She currently has tumors in her spine, shoulder, hip and pelvis. Please continue to pray that God would be glorified through this trial in Kayli's life.
When Kayli was 8 years old, she went to the doctor for her well child check-up. Upon examination, our doctor felt a large mass in her abdomen and sent us to Akron Children's. After a whirlwind of tests and then surgery, Kayli was given the diagnosis of ganglioneuroblastoma. Her tumor was the size of a grapefruit and they were not able to resect all of it, due to it lying along the vena cava. For the next…
Scans coming up
Wednesday, July 9, 2014 4:45 PM
We haven't updated for a few weeks because there hasn't been a whole lot going on...praise the Lord! Kayli continues to take her chemo twice daily and manage the side effects with other medications. She is maintaining right now on all her usual meds as we wait for her upcoming scans. This MIBG scan will let us know if the chemo is working or not by showing if her current tumors are stable or a little less. Of course the possibility is always there that tumors are progressing, but worrying about this will not change the outcome. So, we focus on the now....the beautiful days and the thousand little things that etch in your mind as a memory. We choose to look at what we have and not what may come tomorrow. We have lived this battle for so long and know that worrying robs you of peace and joy.…