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Cameron Chase Rannow

Cameron Chase Rannow

Cameron Chase was born October 7th 2009, at the University of Minnesota RiverSide Campus.
Cameron was born with a severe congenital Heart defect called Hypoplastic Left Heart Syndrome, which basically means he has half a heart.
Cameron had his first of many open heart surgeries at just 8 days old. He did wonderful. Cameron's biggest challenge after that surgery was to learn how to drink a bottle. So we spent the first 5 weeks in the hospital.
Cameron had his stage 2 open heart surgery when he was 6 months old, flew that surgery and only spent 7 days in the hospital.

He's had 7 heart catherizations already, 1 blood clot and anneurysm in his groin. Cameron was just recently diagnosed with Failure to thrive and SPD (sensory processing disorder)
Cameron is on daily meds for his heart and goes to therapy three times a week for his SPD.


My Journal

CHD Awareness 2017

February 7-14th is Congenital Heart Defect Awareness week (a week is not nearly long enough to raise awareness on something so important and so underfunded).Once again I have reached to the Mayor in my town, sharing our story and pictures of Cameron and why it would mean a lot to us if he would help us raise CHD Awareness. Once again he was more than happy to help us raise awareness by signing the Congenital Heart Defect Awareness proclamation. Mayor Nickolay also sent it over to the local newspaper. We greatly appreciate his help in spreading awareness on something that has affected our family! We have been invited back to Cameron's 1st grade class to talk with the kids on why and how Cameron's heart is different from theirs. The kids are also so thoughtful and eager to learn. We share pictures with them, show them Cameron's zipper scar. They usually ask…