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Jackson Doyon
I am 2 years old and diagnosed with Mastocytosis and mono-clonal mast cell activation disease, they are classified as a myleoproliferative neoplasm disease. I have it in my gi tract, skin, and they believe my lympnodes. Because of this I am triggered too have allergic type reactions including anaphalaxes to multiple things including SUNLIGHT, HEAT, COLD, STRESS, FRICTION, VIRUSES, INFECTIONS, CUTS, SHELLFISH, TREE NUTS, LEMON, STRAWBERRIES, RASPBERRIES, CAROTTS, COCOA, MSG, BENZOAT PERSEVATIVE, AND much much more. They are thinking about doing a feeding tube because I am not growing. I am confined to my home unless I got to the doctors or hospital for the time being. My life is much different then most peoples and it is a fight to keep running everyday. It's a disease of the bone marrow called a MPN disease mylopreliferative neoplasm disease and I was born with it. It is very rare also a…
My Journal
OH NO SPRING IS COMING
Wednesday, March 27, 2013 12:36 PM
Spring is coming and Jackson is having a hard time with his mastocytosis because of this. :-( We are going back to NIH real soon, I hate seeing him like this and not be able to do anything but give him his medications.
My Photos
Sir Sheldon Paw's, Jackson's Therapy Dog
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Jackson's first time meeting SANTA
We drove 5 hours to see zeke, he has the same thing as me.
Jackson's new Therapy dog "Sheldon" to be trained for service.
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upper gi study
day at hooters
my birthday cake was a bad thing for me
blistering hand
tough day
I looked life less this day, mommy was really worried
I spend my life in the hospital
my birth day cake swelled up my eye looks like next year it just going to be play dough
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friendship bracelets selling to raise money for jacksons supplies
